Portugal's Palliative Care Faces Critical Challenges Despite Legal Rights
Palliative care in Portugal faces significant challenges, despite being enshrined as a citizen's right in the Basic Law on Palliative Care (2012) and Decree-Law 52/2022. Accessibility, workforce conditions, and funding are key issues affecting this crucial healthcare sector.
Geographical disparities are evident. In 2023, nearly half (48%) of patients referred to palliative care units in the private or social sector died waiting for a bed, highlighting the strain on resources. Meanwhile, 12% of patients lived over an hour's travel from their nearest Palliative Care Unit. The Lisbon and Tagus Valley Health Region, with 77% of the total beds, bears the brunt of this demand.
The 'postal code lottery' is a stark reality. The Portuguese Association of Palliative Care decries the system, stating it's 'inhuman and unfair' that only those in certain areas can access care. Health professionals echo these concerns, citing lack of investment and poor working conditions for palliative care teams. The aging population and rising prevalence of diseases like cancer, cardiovascular, and cerebrovascular conditions exacerbate the pressure on continuous and palliative care.
To address these issues, the Portuguese government must prioritize investment in palliative care, both financially and in terms of career enhancement for professionals. Ensuring 24-hour telephone coverage for team members, as required by the Bundestatut for Palliative Care and Decree-Law 52/2022, could also improve accessibility. Moreover, expanding the reach of palliative care to match the needs of the entire population, regardless of location, is crucial to ensure everyone can access dignified end-of-life care.
