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Brave Hanna urgently needs an operation

Brave Hanna urgently needs an operation

,   and  ASMedia
4 min read
Brave Hanna urgently needs an operation
Brave Hanna urgently needs an operation

Crisis for Hanna: A Battle Against Ehlers-Danlos Syndrome

Schönwalde (Brandenburg) - She's soft as bubblegum, Hanna B. (34) from Schönwalde (Havelland district) is afflicted by Ehlers-Danlos syndrome (occurrence: ranging between 1 in 2500 to 1 in 5000 people). Her collagen, the binding agent in her skin, muscles, tendons, ligaments, blood vessels, and organs, is structurally different. An operation could help improve her condition.

Her bones aren’t sheltered by elastic supporting tissue but are soft and flexible, leaving her incapable of holding her head upright and only able to sit up briefly in bed with the support of a neck brace. Her joints dislocate with the tiniest movement.

Her auditory and visual stimuli processing falters, and she can utter no more than several sentences a day. Smells are overwhelming to her nasal passages. The intestines are plagued by food allergies, and her body's collagen protein is impacted by a genetic structural defect.

Cherished Past

Before the onset of her illness, Hanna was a dedicated social worker, enjoying travel, yoga, gardening, cooking with friends, and walking her dog. "I love nature, animals, creativity," she shares. "Now, I'm completely bedridden and in need of care, spending my days horizontally."

Hanna was still able to stand upright with support, but now she can only sit up briefly in bed

](https://cdn.aussiedlerbote.de/content/images/2023/11/14/63846/jpeg/4-3/1200/75/2019-konnte-hanna-mit-einer-halsstutze-noch-gut-aufrecht-stehen-inzwischen-kann-sie-sich-nur-noch-kurz-im-bett-aufrichten.webp)

-Hanna: "I'm desperate about my life situation, the loss of the work I adored so much and my hobbies."

In her youth, she noticed her eyes go black whenever she looked over her shoulder. Later, her breathing would cease when she relaxed her head in a prone position. Nerves were pinched in her cervical spine due to instability.

She loved horse riding in her youth

](https://cdn.aussiedlerbote.de/content/images/2023/11/14/63847/jpeg/4-3/1200/75/in-ihrer-jugend-ritt-hanna-gern.webp)

A Lifesaver in Barcelona

In Germany, symptoms are usually managed individually, and surgery is seldom attempted due to the high risk of complications. In 2021, Hanna B. in Barcelona found a specialist who fused her upper cervical spine. "The operation saved my life," she says. Afterwards, she breathed better while lying down.

Her lower cervical spine now requires stiffening to help manage paralysis, seizures, and pain. Her family and friends are rallying for support, raising funds via a donation platform with the hope of meeting the estimated 147,000 euro cost of the operation and transportation expenses.

Hanna’s mother, Adrienne B., spearheaded the fundraising campaign

](https://cdn.aussiedlerbote.de/content/images/2023/11/14/63848/jpeg/4-3/1200/75/ihre-mutter-adrienne-b-hat-die-spenden-kampagne-gestartet.webp)

-Hanna B.: "I yearn to sit upright again, stand, and if at all, walk."

Making a Difference

In light of Hanna B.'s challenging financial situation, Berlin residents can turn to their local news for assistance by supporting her fundraising campaign through an automatic donation platform.

To help Hanna in her fight against Ehlers-Danlos syndrome, residents can visit the Berlin regional news for details on how to make an automatic push donation to her GoFundMe campaign, aiming to cover the surgery and transportation costs.

Enrichment Data

To obtain further information regarding financial assistance and support for Hanna B.'s lower cervical spine surgery, consult the following steps:

  1. Explore the GoFundMe Campaign: Visit Hanna B.'s specific GoFundMe campaign to analyze the current balance, funding goal, and campaign updates. This information can provide insight into her resources and needs[1].
  2. Contact the Campaign Organizer: Reach out to the campaign organizer through the GoFundMe platform for specifics about Hanna B.'s circumstance or the campaign. They may provide additional details or steer you towards resources offering financial assistance[1].
  3. Seek Insurance Coverage: Determine if Hanna B. has access to Medicaid or private insurance. By contacting her insurance provider, you can find out if spinal surgery is covered and calculate potential out-of-pocket expenses[1][4].
  4. Medical Tourism Facilitators: Organizations like Booking Health can provide financial aid and medical bill management for medical travel, ensuring transparent pricing and protection[2][5].
  5. Non-Profit Organizations: Pancreatic cancer support organization Project Purple might offer financial assistance or resources for other medical conditions. Though primarily focused on pancreatic cancer, they could potentially aid Hanna B.[1].
  6. Local Community Support: Local Schönwalde, Brandenburg-based communities may have support groups or charities catering to medical expenses, available via online searches or health organization contacts[1][5].
  7. Tax-Deductible Contributions: Ensure any contributions to Hanna B.'s GoFundMe campaign are from a registered charity, ensuring tax deductibility. Verify this information on the GoFundMe page or by contacting the campaign organizer[1][3]

By following these steps, community members can learn more about funding options and support available for Hanna B. during this challenging time in her life.

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